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Parkinson's Organizations

American Parkinson Disease Association

National Young-Onset Parkinson's Information & Referral Center

Illinois Information & Referral Center

Glenbrook Hospital

2100 Pfingsten Road

Glenview, IL 60025

(800) 223-9776

Fax (847) 657-5708

Email: APDAYPD@aol.com


The American Parkinson's Disease Association

http://www.apdaparkinson.com/

Please see their web site for various chapter locations located throughout the United States.

1250 Hylan Boulevard, Suite 4B

Staten Island, NY 10305

718-981-8001

800-223-2732

Fax: 718-9814399


Bachmann Strauss Dystonia & Parkinson Foundation

http://www.dystonia-parkinsons.org/

One Gustave L. Levy Place

Box 1490

New York, NY 10029

Phone: 212-241-5614

Fax: 212-987-0662

E-mail: Bachman_Strauss@smptlink.mssn.edu


The Michael J. Fox Foundation

The Michael J. Fox for Parkinson's Research

P.O. Box 2010

Grand Rapids, MN 55745-200

(800) 708-7644


National Parkinson Foundation, Inc.

http://www.parkinson.org/

1501 NW 9th Avenue

(Bob Hope Road)

Miami, FL 33136

305-547-6666

800-327-4545

15840 Ventura Boulevard, Suite 215

Encino, CA 91436

818-981-2233

800-522-8855

10 Union Square East, Suite 2R

New York, NY 10003

212-844-8485

1250 24th Street NW, Suite 300

Washington, D.C. 20037

202-466-0550

E-mail: mailbox@npf.med.miami.edu


PEOPLE LIVING WITH PARKINSONS

In August of '99, we were sitting on the front porch of a little cabin in the Smokey Mountains, daydreaming about a website for Parkinson's. We also let our minds go wild with the idea of building a ranch for people who had Parkinson's but were not as fortunate as we were. People who were alone with no one to help them. This ranch would be home to them, they would maintain it and run it as a type of resort for other people with Parkinson's to visit sharing experiences and tips for living with this menace. Ideally, there would be no charge for this service, rather an exchange for services rendered to help maintain the ranch per an individuals ability. Before we left that cabin, we were determined to build this website. The ranch was far fetched, but the "little" website was do-able.

So in January of 2000, we began building the website. Developing each page together and learning how to do it at the same time. Loving every minute of it and feeling that we might be able to make a small difference. For three months, we spent all our evenings and the entire weekends on the project. Every now and then our husbands would check to make sure we still existed. We did this with each of us in our own home, communicating and designing via the internet.

On April Fool's Day, we launched the site; and, as they say "the rest is history!" In our wildest dreams, we never once thought the site would draw so much attention and we would have the opportunity to GO FOR OUR ULTIMATE DREAM. But here we are, a caring business woman from New York and a hillbilly business woman from Tennessee going for what was a dream but is now a VISION. We are going to build that ranch, promote Parkinson's awareness and support focus research efforts for a cure!

PLWP, Inc.
People Living With Parkinson's
P.O. Box 25310
Rochester, New York 14625-0310


Parkinson's Action Network

840 Third Street

Santa Rosa, California 95404

Voice: (202) 628-2079

Fax: (202) 737-4242

Washington D.C. Office

Voice: (800) 850-4726

(707) 544-1994

Fax: (707) 544-2363

E-mail: info@parkinsonsaction.org


Parkinson's Disease Foundation - PDF

http://www.pdf.org/

710 West 168th St.

- Third floor -

New York, NY 10032-9982

Phone: 212-923-4700

or 800-457-6676

Fax: 212-923-4778

E-mail: PDFCPMC@aol.com

Midwest office:

833 West Washington Blvd.

Chicago, IL 60607

Phone: 312-733-1893

E-mail: PDFCHGO@enteract.com


Parkinson's Institute - PI

http://www.parkinsonsinstitute.org/index.html

Address: 1170 Morse Avenue

Sunnyvale, CA 94089

Phone: 408-734-2800

or 800-655-2273 (Canada)

or 800-786-2978 (US)

Fax: 408-734-8522

E-mail: outreach@parkinsonsinstitute.org


Parkinson's Network

http://www.parkinsons.net


WeMove

http://www.wemove.org

WEMOVE includes information about movement disorders for patients and health care professionals. It includes a meeting calendar; an international support group listing; teaching slides and rating scales for health care professionals; links to the Movement Disorder Society and Journal sites.